Wednesday, January 7, 2009

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(Canada) The Turner's Syndrome Society of Canada, a non-profit charitable organization, was founded in 1981 by an individual with TS who wanted to share experiences and information. It provides support services for individuals with TS and their families and disseminates up-to-date medical information to families, physicians and the general public. (In French and English.)
http://www.turnersyndrome.ca/
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This is an organization devoted to promoting optimum health care for people suffering from genetic disorders. They're full of specific intersexed conditions like Klinefelter's Syndrome, and a page where you can search for related resources by condition.
http://www.geneticalliance.org/
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HYPOHH.net is the patient support organisation for sufferers of Kallmann's syndrome and other forms of hypogonadotrophic hypogonadism. Hypogonadism is characterised by a failure to go through puberty naturally and can affect people of any gender.
http://www.hypohh.net/
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Includes contact information, medical information, a library, articles, newsletter, bibliography, store, faqs and writings about the intersexed condition.
http://www.isna.org
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Includes contact information, writings by and about intersexed people, and medical recommendations.
http://www.ukia.co.uk
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